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The 13th Annual Bid For A Cure event will be held at Crossroads Institute on Saturday.
The Twin County area saw the beginnings of Cystic Fibrosis (CF) fundraising in 1998, when Kelly and Susan Haga’s infant son was diagnosed with the disease. For several years, they organized an annual walk-a-thon, and In 2001 they stepped up their efforts when they had another child diagnosed with CF.
Haga recalls the early days of the auction and can’t believe how far the fundraiser has come. “It’s really about neighbors, and what we can do when we work together for good.”
While CF is an inherited illness, neither Susan nor her husband, Kelly, have it. But both of them do carry the defective gene that causes it, a fact uncovered through genetic testing following their oldest son’s diagnosis.
One in 20 people carry the gene, but most aren’t aware that they do, explained Haga. Some 30,000 cases of CF have been diagnosed in this country, and about 1,000 new cases are diagnosed each year.
In order to be born with cystic fibrosis a child must inherit two copies of the CF gene, one copy from each parent. If both parents are carriers of the CF gene, but don’t have the disease themselves, their child will have a one in four chance of inheriting both defective copies and having cystic fibrosis. There is no known cure for the disease.
There’s additional cause for hope, Haga said, with the approval of a new drug for CF patients, a development she called “huge, huge news.”
Kalydeco just received approval last year from the U.S. Food and Drug Administration for patients who are age 6 or older and who have a specific mutation of the CF gene, according to the CFF website.
“This is the quickest the FDA has ever approved a drug, just three months after completing clinical trials,” said Haga, who keeps up with the latest medical developments. “We’re so close to a cure for this disease.”
“With so much promising research on the horizon, it’s more important than ever that we raise every dollar we can to fight CF and improve the lives of people with this disease,” said Haga. “We are grateful for the contributions of each volunteer, donor and sponsor that supports the Bid For A Cure event.”
The event will begin with a silent auction from 9 -11 a.m. The live auction begins at 11:15 a.m. and will last until all items are sold.
This year’s auction features a variety of items, including Disney World Tickets, a Stihl Weedeater, Nolan Ryan autographed baseball, Yellowstone National Park vacation, cedar playground set, Holland America seven-day cruise for two, Porter cable drill press, Trek bicycle, South African photo safari, furniture, artwork, antiques, autographed footballs and basketballs, toys, pool table, fall concert at your place with Wayne Henderson and Helen White, jewelry and numerous other items. They even have a kitchen sink, Susan says.
Food is available for purchase throughout the day, and a 9.5-foot kayak will be raffled off at 3 p.m.
For more information, call (276) 233-9261.